Useful Links

Links

Dignity in Care (UK)

Led by the National Dignity Council, Dignity Champions form part of a nationwide network of over 60,000 individuals and organisations who work to put dignity and respect at the heart of UK care services to enable a positive experience of care.ed by the National Dignity Council, Dignity Champions form part of over 60,000 care

 

Caring for Cognitive Impairment Campaign

The Caring for Cognitive Impairment Campaign is about improving our knowledge and care practices, providing better outcomes for patients, hospitals, staff and loved ones, and reducing the risk of harm in hospitals.

 

Alzheimer’s Australia (National Website)

Alzheimer’s Australia resources provide advice, common sense approaches and practical strategies on a wide range of subjects concerning dementia.

 

Dementia Training Study Centre (DTSC)

Funded by the Australian Government, the Dementia Training Study Centres aim to improve the quality of care and support provided to people living with dementia and their families.

 

My Aged Care

My Aged Care helps you find the information you need about aged care services.

My Aged Care provides you with information about:

  • different types of aged care services
  • eligibility for services
  • how we understand your aged care needs and help you find local services to meet your needs
  • costs of your aged care services, including fee estimators.

 

Dementia Collaraborative Research Centre (DCRC)

The DCRC main priority is meaningful dementia research: the evidence platform for good practice
and best policy for a
healthy Australia.

This website showcases 
DCRC projects, and links to dementia resources;
for any person interested in, or affected by dementia.

 

Dementia Downunder

‘Dementia Downunder’ is an online support group and information resource which has been created to assist families and carers who need information fast. When people are thrust into the world of dementia care they often do not have time to research practical information. This site is run by family carer, dementia advocate and DiCA member Brett Partington and is about ‘people helping people’ .

Everyone is welcome on this site to join a positive conversation which is happening via the facebook group (refer ‘support group’ tab). The members consist of carers, families, dementia care trainers, aged care professionals and people with dementia. This is not a medically based site however is a unique and positive way of dealing with dementia and an opportunity to follow a family’s personal and candid account of their battle with Alzheimer’s Disease.

 

Dementia Alliance International

Dementia Alliance International (DAI) is the global voice of people with dementia, working with the philosophy of ‘Nothing about us, without us’ and encouraging organisations to do the same. It was started by seven passionate dementia advocates from four countries and is an advocacy and support group, of, by and for people with dementia. DAI is also registered as a charitable non-profit organisation in the USA. Membership now represents 35 countries and almost 2000 members and DAI is the global voice of dementia.

DAI is also the peak body globally for people with dementia and seeks to advocate, support, and educate about dementia. As an organisation we aim to provide a unified voice in the fight for individual autonomy and improved quality of life. People with dementia have not been fully included in the very things that affect and matter to them and DAI works tirelessly to change that. We also aim to represent the more than 47.5 million people currently diagnosed with dementia globally, and are in collaboration with Alzheimer’s Disease International.

DAI’s vision is ‘A world where a person with dementia continues to be fully valued and fully included’.

Kate Swaffer, a member and Champion of Dignity in Care Australia is also the Chair, CEO and co-founder of Dementia Alliance International, the Chair of the Alzheimer’s Australia Dementia Advisory Committee and a dedicated supporter of Alzheimer’s Australia. You can contact her at info@infodai.org or via her personal website http://kateswaffer.com.

 

Dementia Centre (Hammond Care)

The Dementia Centre was founded by HammondCare in 1995 and has become recognised as a leading resource and research centre for aged care, both nationally and internationally. Our journey has been one of partnerships with leading research and industry organisations, health care providers and carers, education institutions and communities. Central to the work of the Dementia Centre is our dedication to defining and informing the provision of care and an enhanced quality of life for people of all ages living with dementia and their families.

 

Adelaide G-TRAC Centre

Adelaide Geriatrics Training & Research with Aged Care Centre. We aim to undertake collaborative research and training to deliver positive outcomes for the health and wellbeing of older people.We are part of the National Health and Medical Research Council (NHMRC) Centre of Research Excellence: Trans-disciplinary Frailty Research To Achieve Healthy Ageing.

 

Carers Australia

Carers Australia is the national peak body representing Australia’s carers, advocating on behalf of Australia’s carers to influence policies and services at a national level. It works collaboratively with partners and its member organisations, the Network of state and territory Carers Associations, to deliver a range of essential national carer services.

 

Social Care Institute for Excellence (SCIE – UK)

The Social Care Institute for Excellence (SCIE) improves the lives of people who use care services by sharing knowledge about what works. We are a leading improvement support agency and an independent charity working with adults’, families’ and children’s care and support services across the UK. We also work closely with related services such as health care and housing.

 

ReBOC (Reducing Behaviours of Concern)

A resource to assist those caring for people living with dementia.

The content of this guide draws on currently accepted knowledge of the behavioural and psychological symptoms of dementia (BPSD), and promotes evidence based practice in dementia care to maximise the quality of life for people living with dementia and their carers. This guide aims to enhance communication and interactions between carers, the person with dementia and their family members, and improve the occupational health and safety of people who provide care.

 

SA Health – Dignity in Care Australia Resource

This link is via SA Health and gives an overview of Dignity in Care Australia and states the 10 Principles of Care.

 

Advanced Care Directive Kit -SA Health

A new form for patients to record their Advance Care Directives – gazetted 12 May 2016. (The old form should not be used)

 

Teepa Snow (USA)

As one of America’s leading educators on dementia, Teepa Snow’s philosophy is reflective of her education, work experience, available medical research, and first hand caregiving interactions. Working as a Registered Occupational Therapist for over 30 years her wealth of experience has led her to develop  Positive Approach™ to Care techniques and training models that now are used by families and professionals working or living with dementia or other brain changes throughout the world.

 

Care of Older People Toolkit (SA Health)

The toolkit has been developed to increase awareness about the unique aspects of caring for older people and to provide staff with accessible information and practical tools to help them reduce the likelihood of functional decline occurring in older people under their care.

The toolkit is intended to be used to support service change and best practice within the funds that have been allocated. The toolkit is expected to challenge how any current funds for this area are spent ensuring that the allocated funds are reviewed and used to deliver best practice models of care. The toolkit is not a tool to seek funds over and above what is allocated now or into the future for these services.

 

Dementia Services Development Centre (UK)

For over 25 years DSDC’s multidisciplinary team of clinical specialists, architects and designers have been promoting the importance of design for people with dementia. We have developed a unique insight into what can be done to support people with dementia, based on research and evidence of what makes a difference.

 

Age (UK)

Age UK is the country’s largest charity dedicated to helping everyone make the most of later life. The over-60s is the fastest-growing group in society and there are more of us than ever before. Ageing is not an illness, but it can be challenging. At Age UK we provide services and support at a national and local level to inspire, enable and support older people. We stand up and speak for all those who have reached later life, and also protect the long-term interests of future generations.

 

Dementia Care Matters (UK)

Dementia Care Matters – is a ‘feelings based’ model of care that is being introduced in aged care facilities internationally by Dr David Sheard.

As individual people we passionately believe that ‘Feelings Matter Most’ in dementia care.  We aim to model ourselves how BEING person centred is at the heart of our approach to learning and developing services. Leadership is about creating services that hold up an exciting mirror image of what dementia care can look, sound and feel like.

 

Hospital Research Foundation

The Hospital Research Foundation (THRF) supports people in hospitals across South Australia through vital health and medical research and improved patient care.

Research supported by THRF is translational in nature and benefits the local community as well as those on a national and global scale.

 

Planetree (USA)

Planetree membership is an emphatic 360 approach to fostering exceptional patient-centered care by delivering unparalleled access to services, resources,and support. Our process brings new possibilities to the pursuit and delivery of patient-centered care. Deeper insights, richer learning, and culture-changing collaborations allow organizations to experience a directed yet self-determined patient centered journey. We are excited that patient centered care is an ever-increasing target. Patients’ expectations and involvement in care continues to drive new and exciting programs and structures along the healthcare continuum. As a result, ongoing partnership and membership with Planetree affords organizations access to the latest approaches to organizational challenges of all kinds.

 

Hammond Care

Regarded nationally and internationally as one of Australia’s most innovative health and aged care providers, HammondCare offers hospital care, residential care and community services.

HammondCare is passionate about improving quality of life for people in need and has a particular commitment to dementia care and research as well as to people who are financially disadvantaged.

 

Hogeweyk – Dementia Village (NL)

The Hogeweyk (part of Hogewey care centre. A weyk or wijk being a group of houses, similar to a village) is a specially designed village with 23 houses for 152 dementia-suffering seniors. The elderly all need nursing home facilities and live in houses differentiated by lifestyle. Hogeweyk offers 7 different lifestyles: Goois (upper class), homey, Christian, artisan, Indonesian and cultural. The residents manage their own households together with a constant team of staff members. Washing, cooking and so on is done every day in all of the houses. Daily groceries are done in the Hogeweyk supermarket . Hogeweyk offers its dementia-suffering inhabitants maximum privacy and autonomy. The village has streets, squares, gardens and a park where the residents can safely roam free. Just like any other village Hogeweyk offers a selection of facilities, like a restaurant, a bar and a theatre. These facilities can be used by Hogeweyk residents and residents of the surrounding neighbourhoods.

 

University of Tasmania – Wicking Institute

The Wicking Dementia Research and Education Centre is at the forefront of translational research and support for issues confronting people with dementia and their carers. More than 25 projects are being carried out in Tasmania and nationally, across dementia research fields including neuroscience, medicine, nursing, psychology and sociology, health, economics and policy.

Conferences

national conference

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